becoming my own visual impairment team

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becoming my own visual impairment team

Postby amanda_lalonde » Fri Jun 01, 2007 2:28 pm

hi all, I just asked my dr. if anything like what you guys discuss(the visual impairment team ) exists in Canada because I've never heard of it and he said Hes never heard of it either and that most parents in this area with children with any kind of condition become there own childs advocate. Does anybody have any suggestions as to what things to tell teachers(in a couple years) but daycare providers and family watching her for now? What kind of things do the visual impairment teams tell the teachers?
This is Anna with her patch on and if I might say Patch or no patch she is freakin adorable!!!!
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Re: becoming my own visual impairment team

Postby kathy williams » Tue Jun 05, 2007 6:10 pm

Hello!

In the Uk VI disability teams have developed since my time but the person who knows most aboput Anna is you, and Anna. As she gates older you will be able to tell what her strengths are . To begin with it will be her socialisation which is most important. And she is just beautiful, and will makwe friends, and lay and that is the start! Listen to het too. She will gradually tell you about the way it is for her!

Best wishes,

Kathy
Few people notice that I have nystagmus, but if I think about it, it has had an impact on eevry part of my life.
I havenever knowingly met anyone with the condition but have now spoken to one person. Epiphany!
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Re: becoming my own visual impairment team

Postby chatty cathy » Mon Apr 28, 2008 11:12 pm

Hy in my sons case he is 7 they have someone who comes into school and they test to see what his mear ditance is and far,they will ive advice to the teaching staff like where he is best seated in classroom,the lighting,how he willaess resources ie books,computer he uses a sloping board for reading and also what size font it is that he can see. Hope this helps.
Last edited by Robert on Mon Apr 28, 2008 11:17 pm, edited 1 time in total.
Reason: Converted from CONVERTED CAPITALS. Please use lower case, it is difficult for a person with nystagmus to read consecutive caps.
hy my name is catherine and i am 30 yrs old and i have congenital horizontal nystagmus i have a little boy called andrew james who is 5 yrs old and he also has the same condition and now they think there is a genetic link.
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Re: becoming my own visual impairment team

Postby Sofie » Tue Apr 29, 2008 11:09 am

When your child gets their eyes tested, the person doing it may be able to give you some suggestions as to the type of help/support your child may need. This is what they did with me.
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Re: becoming my own visual impairment team

Postby tony dunn » Mon Feb 01, 2010 2:14 pm

If your child needs glasses they may help. - dont know how they test for such a young age though. I was tested & had glasses when I was 4 yrs old. Cant remember what sort of eye test it was though.
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Re: becoming my own visual impairment team

Postby kathy williams » Sun Feb 07, 2010 1:03 pm

Everey Local Authority and Education Authority has a VI team,. even if they are hard to find!

There are orthoptists ansd teachers of the VI child. In our bit of the Midlands there is also specialist provision for impaired small children in specialist nurseries.

The services are not as well integrated as in some other countries, but they are there.

Nystagmus Network also provides advocacy for parents in relation to schooling and statementing.

Go to http://www.nystagmusnet.org
Last edited by James on Sat Feb 27, 2010 4:21 pm, edited 1 time in total.
Reason: Made URL into hyperlink
Few people notice that I have nystagmus, but if I think about it, it has had an impact on eevry part of my life.
I havenever knowingly met anyone with the condition but have now spoken to one person. Epiphany!
kathy williams
has nystagmus
 
Posts: 202
Joined: Tue May 15, 2007 5:38 pm
Location: Leamington Spa UK


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